Sunday - Day 6

Genevieve continues to hold her own, and Hillary continues to fight fatigue, exhaustion and having enough to be all that Genevieve needs. Hillary is doing a super job, we (Meredith, Dave and I, her respite team) could not begin to be the constant caregiver that Hillary is for her daughter. It is a hard job; Genevieve's nurses can't say enough good things about the relationshp Hillary and Genevieve have, and Hillary's devotion.

I would love to report that Genevieve had a good day, she did not. She was in constant pain with brief snippets of smiles and wide eyed wonderment...mostly likely when Meredith was doing nothing short of standing on her head. Every child should have an Aunt Meredith, sheer love that has no boundaries.

The chest tubes remain...there is no alternative...she is still leaking too much fluid, and if the tubes were removed too soon, it would be disastrous. Pain management without narcotics is the challenge of the day. Tylenol only takes the edge off...the pain still exists. The only relief is removal of the 3 tubes that have been in her since Tuesday of last week. We wait, we fill our lungs with air and we know that tomorrow is a new day...Genevieve has many new days to embrace...the long road provides many lessons...we are in it for the long haul.

Genevieve no doubt feels all the love God and His kingdom provide...we thank you all, we could not walk through tough days like today, without your love and prayers.

Peace
-Laura